Special Needs
You Are One
What If?
You were misunderstood, isolated, never held, never educated, had to wash your bedpan, had no concept of mom or dad, weren’t allowed to touch anyone else, but were actually perfectly normal by all appearances (except one unseen diagnosis)?
As crazy as this sounds, this is the story of Xiao Ling, a 3 year old from Zhonshan, China.
For many reasons, HIV is not something China has a lot of experience dealing with. Subsequently, many of the same misconceptions, misunderstandings, and unjustified fears of years past are the norm. Xiao is HIV positive but is being dealt with as if he has leprosy and can’t be touched or isn’t worth educating. Through a random posting, I encountered this article about Xiao, and it has touched something deep within me and Melissa.
I should probably back up and explain why. In November, we attended an annual fundraising banquet. It’s extremely encouraging to be around so many like minded people wanting to defend the fatherless. The theme was ONE, that you can help one, it only takes one person to make difference, etc…something we’ve always shared with people who ask why we’ve chosen the path we have for our family.
Heading into the banquet, Melissa and I were at the point of praying for where God would lead us next on our orphan advocacy journey. We both had prayed and agreed we were not supposed to go down the traditional adoption path again; fill out application, pick a country, wait for a referral, etc. We simply agreed we knew we were to be at the ready when God calls to act, and this is where we’ve been for many months.
In the midst of the banquet, while David Platt was speaking, our new path became apparent to me. We were to advocate for the orphaned in China who have been diagnosed as HIV+. I didn’t mention this immediately to Melissa as I needed to make sure this “stuck” if you know what I mean. We’ve all been swept up in the emotion of an event to only wonder later what in heaven’s name were we thinking?! The clarity around this never subsided in the coming weeks, so I finally shared my heart with Melissa at the next opportunity. I told her we should make it known that we are willing and ready to help ONE child in China who has been diagnosed HIV+. She hardly blinked and said YES.
Very shortly after, while searching adoption and orphan stories, I found the above article and simply sent it to Melissa because it was in line with our discussions. Not so much to say “here is a child,” but to begin the discussion around the apparent need. If you read the article, it states this boy is not adoptable (which isn’t correct), and it didn’t state what orphanage he is in. Through some internet sloothing, I believe we’ve found the orphanage and have talked with an adoption agency who has previous experience getting HIV+ children adopted into the US. They have indeed been able to help us locate him, and we are now waiting to hear what can be done for him. At the minimum, he needs someone to go there and love on him.
So, at this time, we are advocating for Xiao. Whether he is to be a Freeman some day is unknown but we are trying to see if there is a foster family near him willing to take him or anything to get him out of his “jail” like conditions.
He is ONE boy.
Made in the image of God.
Who needs ONE person to make a difference.
Please join us in praying for Xiao and how God can use us to help and advocate for him.
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I’m an Educator by trade, father of 5 (2 internationally adopted), love participating in triathlons and have been a Christian since my early teens. I am currently the Vice President of Academic Affairs for Virginia College’s online division based out of Birmingham, Al and quickly becoming overwhelmed (in a good way) with volunteer work with Lifesong for Orphans and their international orphan care ministry along with organizing short term missions recently at our church. Read more from Chris and how God has already worked on behalf of Xiao on Chris’ blog.
Healing Beneath the Surface
This morning, I raced to get the kids off to their schools and then get on over to CHOP’s cardiologist for Lydia’s appointment. I wasn’t worried about the appointment. A check up every 6 months. Just gotta do it.
A VSD put her in the special needs program. We were prepared for heart surgery. We were relieved to learn the week we got home that surgery would likely never be needed. Our cardiologist explained that it would only be necessary if the valve started to pull into the little hole between the walls of the bottom two chambers of her heart.
“Show him your heart, Lydia.” She pointed to her chest and said, all drawn out as she does, “Right here.” He listened. He listened some more. She got the EKG with stickers that tickled. Then, we went into the little room fitted with a big ole bed for her echo.
The tech pulled up her echo from 18 months ago. I could watch it on the computer screen and hear it–her heart sounded like a little bird to me, racing.
“Was she really upset when we did this before?” she asked.
“What do you mean?”
“It’s just that her heart was a bit crazy there. Looks like she was really worked up.”
She wasn’t.
18 months ago, we were in that same room with the same technician even. It was just me and Lydia, newly home, still getting to know each other. I sat there with her and rubbed her legs during that echo all while she lay perfectly still, just looking at me, not making a peep. I remember at one point, I even got her to fall asleep.
But, she wasn’t at peace. For a year, she never left one building. One day, one of the nannies there dressed her up nicely in new clothes, put her in a car for perhaps the 2nd time in her life, drove 2 1/2 hours, brought her into an office building and handed her to a white lady with a big nose who was crying and laughing at the same time who then passed her back and forth to a big white guy with red hair. We took her to our hotel room, then an airplane, then another hotel room, all while going to restaurants and walking around crowded streets. Then, after a very long plane ride, we arrived somewhere entirely new–new sounds, new smells, new people, new children wanting to touch her and hug her.
As calm as she seemed during that echo 18 months ago, the poor baby was upset. And, we’ve got a video record of her heart to prove it.
But, today, was different. She happily laid on the bed and talked to me about Dora who they had playing on a screen for her to pass the time. I watched the screen and the images of her heart, amazed at the clarity of the picture and how we were able to painlessly look right into our little one’s chest. Amazing.
And, then, she said it. The tech smiled at me and said it.
“Have you been praying?”
Her heart is healed. The hole is gone. Her heart is whole. Totally whole.
The cardiologist, an adoptive dad of two himself, smiled and told us he doesn’t want to see us ever again.
Amazing.
All 23 lbs of her.
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Forever changed by our experience of being adopted and adopting, Kelly is a stay-at-home mom/manager to 4 children–the youngest of whom is from Baoji, Shaanxi, China–who is a professional juggler, juggling her calling as wife and mother with a small online store (Jiayin Designs), editing, administrating this site, and serving adoptive families through The Sparrow Fund. You can learn more about their adoption story, how they’ve been changed, and what life for them looks like on their personal blog where she’s currently featuring some great ways you can shop with purpose this season (which includes over 25 giveaways!).
{Advocating} Ready to Belong
In July, my husband and I traveled to China to serve with Bring Me Hope to provide a camp experience for orphans. As prepared as you think you are with packing lists and immunizations and reading all you can beforehand, I wasn’t at all prepared for what God had in store for me.
My heart was broken. My heart was broken over each one of those children He brought to that camp. Broken.
During my second week in Xi’an, I had the tremendous blessing of spending 5 days with a sweet little boy [David]. I’ll never forget seeing him for the first time. He immediately reached for my hand and held it with a tight grip. He didn’t want to let me go. I noticed right away that he had some difficulty walking. And, as we walked to the edge of the room together to play, I became more aware of the trouble he had walking. As I walked easily in stride, I could feel his body shift from left to right as we walked hand in hand. He has scoliosis. I imagine that the years of little to no treatment and no family to help him get what he needs has contributed to his rhythmic gait.
But, his spirit is so bright. He smiled up at me with an excited grin and told our translator he was excited to come to camp. Every few minutes, he would shift his entire body to turn and smile at my translator and me. I remember consciously noticing what a beautiful smile he had.
That first afternoon, we played badminton until we could play no more. And, he laughed and played with joy despite the differences in how God formed his shape.
When I think about [David], I think first of his sweet spirit–quick to listen, eager to try new things and soak every bit out of camp that he could. He had two close buddies at camp. They all lived in the orphanage together, and it was very easy to tell that they were best buds, three peas in a pod. It occurred to me that they were probably the closest thing he has to a family, the closest thing he has experienced of what it feels like to belong.
He was made paper ready, made available for international adoption when he was only 5 years old.
He just turned 8.
And, for nearly 3 years, he has waited, paper ready to be adopted.
[David] seemed most happy when he was beside his two best friends. I couldn’t help but picture him home with a family, HIS family, and how happy he would be, how much potential he has, how much he’d grow and thrive. And, how tightly he’d hold the hand of his mother and father.
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This little boy’s name has been changed for the purpose of advocating.
please email Kelly if you are interested in learning more about him. Additional pictures are readily available, and you will be put in touch with someone who can send you his full medical file.
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Micah Hodges
Micah Crowe is 22 and lives with her husband, Josh, in Vero Beach, Florida. They spent 3 weeks in China, serving with Bring Me Hope, an orphan ministry. She has also served in Russia and Taiwan working with youth and children. She enjoys traveling and playing guitar, but her real passion is for missions. Micah and Josh plan to move overseas to be full-time missionaries.
SPD Meltdown
She starts crying…lots of stiff, foot stomping crying…crying “mommy, mommy, hold me.” It’s the beginning of a meltdown. Of course, I immediately bend down and scoop up my precious crying babe. But, what’s different about this cry? The cause? It’s sensory processing disorder. It’s a cry and pain that cannot be comforted, a cry that can’t be stopped, a cry that the more you try to comfort and soothe, the more intense and raging it becomes, a cry that is actually more like a blood curdling scream, a continual scream that will only stop when her body has fully let it all out. SPD is holding her hostage in her own body.
I pick up my crying babe just for her to start screaming, “don’t touch me, put me down.” I put her down. She changes her screams of “put me down” to “I want to hold you…hold me, hold me” and this goes on for at least 40 minutes, sometimes much longer. We sit in a chair as she screams and kicks, fighting me, fighting herself the entire time, her body is extremely tight, rigid, stiff. She clings to me for dear life and pushes me away at the same time. We try walking around but it’s extremely difficult to carry her because of the intense kicking. The love that a mama normally pours out for her hurt child–the singing, the caressing, the holding, the kissing, the whispers, the beautiful loving–actually causes my girl to spiral even deeper.
She kicks violently, she slaps my legs until they are red, she frantically rubs her feet together until they are raw and almost bleeding. I try to protect her. I try to hold her feet, separate her feet, anything to keep her from rubbing them together. But, her adrenaline is raging. The child who has hypotonia is just about stronger than her mama. The more I try to stop her, the more persistent and focused she becomes in rubbing her feet. The more I ask her to stop kicking and flopping her legs all over, the more she flails, the more she screams “don’t touch me, hold me, put me down, I want you.”
This will only end when her body, her brain, and neurological system will let her rest, when her disorganized little body can calm long enough to get her grounded.The screaming, kicking, feet rubbing, stomping, pushing, slapping is starting to fade. Her body is exhausted and will finally let her rest. She collapses on my shoulder and her SPD cry turns into an exhausted weep.
It’s over; the meltdown is done. She will weep for a few moments, sit up, and carry on like nothing ever happened. I can still see the exhaustion in her eyes. But, for now, her body is at peace and communicating properly. She hums and skips around as if all is well.
But, this mama doesn’t forget. This mama grieves for the deep, internal wounds my baby girl carries, for her disorganized little insides. This mama grieves that no matter how much I try to comfort her during these times, the more pain it causes her.
Lord, continue to heal our miracle girl, the precious babe you fashioned and created to be our girl, the precious babe you had us fight for, the sweet girl that we are still fighting for. Equip us to help her heal. Show us everything she needs and how we can help her. Amen.
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Please visit Stacy’s blog to read 4 Years Living With Sensory Processing Disorder about how they discovered their daughter had SPD and how they have walked through it medically. It’s worth your time. Truly.
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Paul and Stacy have been married for 15 glorious years. They have been incredibly blessed with 7 miracle children (1 homegrown, 4 open domestic adoptions, 2 china special needs’ adoptions). Their greatest passions are serving the Lord, their children, homeschooling their miracles, and advocating for the orphan. They feel deeply called to raise awareness about the orphan crisis and advocating for orphan children across the world. Follow the journey the Lord has called them to here.
Gotcha Day
Ty’s one year Gotcha day.
It has been a year filled with witnessing miracles and one of the hardest years of my life all at the same time. For the girls, we always celebrated their gotcha day with a yummy dinner and a small gift that we bought for them in China. But, we are treading on different ground this time around. Last week, when we told Ty that his special day was coming up, he started to get sad and had a lot of questions. Not the kind you would expect. He does not ever want to talk about his time in China. We bring it up often or try to ask him questions which he NEVER answers. We all love China and talk about one day going back with the entire family. He will quickly pipe up and remind everyone that he does NOT want to go to China. When the conversation does turn to China he usually starts to question me: “Mommy, what took you so long to get me in China?” “Why did it not take a long time for you to get Mina and Finn in China?” “Mommy, you should have gotten me first!” “Mommy, I want to be a baby when you get me in China.” I think he blames me for the fact that he waited so long.
And then, sometimes he just tells us that he WAS a baby when we came to China. I think he would love to just gloss over and pretend that is how it all went down. Denial. I totally understand that. I don’t know if I will ever be able to tell him the truth that I had seen his sweet face waiting on waiting lists for over 2 years before I even thought about the possibility of adding another child to our crew. I do know for sure that for the past year, this boy has loved like I have never seen. He has the biggest heart I have ever known, and I am blessed to be his Mama.
Needless to say, we didn’t celebrate too much. I don’t think he would have appreciated it. He wants so badly to just forget, to be just like his big brother and not have this past. So, we just went on like any other day. But, I went back to look at some pictures of my boy one year ago, and I broke into tears.

In this picture I see a pale skinny little kid. I remember how weak he was. How ridiculously uncoordinated he was. How he hoarded food. How he flinched when you tried to give him a high five. How he tested his limits to see if we could protect him. How he would carry 17 toys at the same time for fear he would lose one. How he was too nervous to leave my side for a second. How he would try to win our love by sweeping and cleaning like mad. How happy he was during the day and then we would go in to find him quietly sobbing at night. How he would wet the bed every night for fear of getting out of bed.
Now, if you put these pictures side to side, I wouldn’t pick my boy out of a line up. He is a totally different child. He looks and acts like he has aged 4 years in the past 12 months.
Last year in China, I will admit that I was scared. He couldn’t even tell his colors to the guides, he couldn’t hold a pencil and trace a straight line. His Mandarin, the few times he tried, was barely understandable to anyone in China or here. I was worried that he was very delayed. Now that he is a few weeks into Kindergarten, I spoke with his seasoned teacher, and she said he was doing fabulous, better than a lot of the kids who have been here their whole life. She said she would have him reading by the end of the year. I cried huge tears of joy! I am crazy proud of how far he has come. He is so brave and so determined and so loving. And, I am blessed!
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Amy and her husband Marc live in North Carolina and are the parents of 6 children, 3 biological and 3 blessings from the China Special Needs program in the last 3 years. Never in their wildest dreams did they imagine that their family would be bursting at the seams, but they have been enormously blessed by opening their hearts to adoption. Their lives are simple, chaotic, overwhelming, and overflowing–and they wouldn’t have it any other way. Visit us in the midst of our happenings here.
What Every Child Should Know

Every child should know they are a miracle. It haunts and breaks me to think of kids right here in my town and across this globe that will never know love. It is a devastating reality. Sometimes it can be easy just not to think about ‘those’ kids. It can be easy not wrestle with things outside of our comfort and have to deal with what you feel as result. But the easy way in most life is usually the least rewarding….and least exciting for that matter.
Foster care…adoption…orphan trusts….child sponsorship…..respite care….supporting those that adopt…..
SO MANY WAYS TO MAKE SURE A CHILD KNOWS LOVE.
Last year I shared about my friend Angie who was selling gorgeous headbands and bags to raise money for her adoption. She just returned from China with her little girl! They have a beautiful story and my family will forever be changed because they were willing to share it.
Angie led me to Nicole & Katie. I was daily checking photographer Nicole Renee’s family blog while she was in China meeting her daughter and preparing to bring her home. Aren’t the best stories the real life ones? Can you believe how gorgeous Brooklyn is? What an incredible gift she must be to her parents!
And then there is Kate….Katie is in the starting stages of her adoption of a little girl in the Congo. You can read on her blog about their process and their fundraising.…and how cute is her family!
Earlier this year I shared about a new friend I met during the craft weekend at Meg’s. I remember sitting in the back of a van learning all about Amy and her family. She’s the NASA all-star that sent me the Astronaut Legos! She shared about her amazing son Ben. If you visit her blog you’ll see how Ben lights up the whole space. Ben is an incredible kid…and he has Down syndrome. Amy began looking around Reece’s Rainbow – part of Reece’s Rainbow’s mission is “to rescue orphans with Down syndrome through the gift of adoption.” It didn’t take long before Amy’s family began the process to welcome another son into their family. They are working hard at bringing little Davis home…. meet Davis:

A big brown eyed cutie, he lives in Ukraine right now. But he’s got a big brother in America who also has Down Syndrome….and those two boys need to be together. Their mommy needs Davis in her arms! Go here to learn about the Jupins, about Davis, and how you can help bring Davis home!
About 2 years ago, I shared a little session I did with my good friends Robert & Rachel. They were getting their family book together for a domestic adoption. Since that time they’ve added two handsome boys to their family. Not only have they gained two sons, through open adoptions they have been given an incredible gift to have healthy relationships with the strong women that gave life to their boys. This is Rachel and her youngest son (yeah, she’s gorgeous).

So, yeah, we can make a difference. Maybe it is opening your home to a child currently in the foster care system. Maybe it is looking beyond what a medical form says and finding your child waiting in another country. Maybe it is being the answer to the heart cry of a birth mom in your town. Maybe it is supporting someone else on an adoption journey. Maybe it is advocacy and raising awareness. Maybe it is babysitting for those foster care parents you met the other day or playing a game of basketball at a nearby DHS shelter. You can make a difference. I can make a difference. And really….why wouldn’t we?
Because every child deserves to know love & security.
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Ashley’s days consist of a lots of Legos and lots of seemingly mundane moments. As mom to four kids (boys 3, 5, 7 and a 2 year old daughter) she finds the most beauty in those mundane moments and relishes the adventure of parenthood with her husband Chris. Aside from an addiction to painting everything that doesn’t move, she is passionate about all areas of orphan care and social justice issues especially as they relate to children. Ashley chronicles her adventures as a mom, crafter, photographer and advocate her her blog, Under the Sycamore.


Are you interested in becoming a family for a little one with Down Syndrome? This little girl is hoping her family finds her soon. 




















